No news is good news!

 

  Sad News :( my Aunty Martha passed away on Tuesday Dec 6^th at the age of 88. She had been sick for some time but took a drastic downhill the last few weeks.  As unbelievably sad as this is, it is good to know she is no longer suffering. RIP Aunty Martha you will be missed beyond belief but our memories with you will give us comfort everyday. I love you <3.

  I don’t have a whole lot to write about. Pretty boring week, which in the large scheme of things I suppose is good thing. I have been stuck in the house all week, and I am starting to go nuts because of it.  You know it is sad when you are excited about  Drs. Apt because it allows you to get out of the house. Speaking of Dr. Apts. I had to go to MGH on Sunday to have my blood drawn-why I couldn't wait till Monday? I do not know. Usually when I have Dr. Apts. I enter through the Wang doors, which is a side main entrance because you can valet your car and you do not need to walk. Unfortunately, because it was Sunday the Valet service was not open so I had to park my car on the street and walk. Granted it is only a 5 min walk but when you can’t breathe it feels like you just ran a marathon. So I get to the doors and to my luck they are locked?! I was like "this is a joke" but nope it was real life. So I then had to walk all the way around to the front main entrance :(. I finally get inside and have my blood drawn. I am ready to leave and although the Wang doors were locked from the outside I thought for sure they would not be locked from the inside (The Wang doors are a lot closer to where I parked my car) I mean how can you lock doors to a main entrance from the inside of a hospital-can we say fire hazard??-But to go along with the luck I had been having that day I get to them and they are all locked! Ugh, it gets worse, so I get back on the elevators to get back to the first floor so I can leave through the front main entrance. Once on the elevator I try to press the button for the first floor but it wont let me so I pressed the button for the second floor and it worked so I figured this elevator was just not working. So I get off at the second floor and then get one a new elevator and try to press the first floor button and again it does not work. At this point I am pretty sure there is smoke coming from my ears. I get back to the Wang floor and find two security people stuffing their faces at a table with coffee and donuts. I asked them what I should do since the doors are locked and the elevators seem to be broken. Their response-"Oh the elevators are also locked and you have to walk up these two flights of stairs to get back on the first floor" ...wait do you not see the oxygen tube strapped to my face? I can barely walk on a flat surface never mind walk up TWO flights of stairs. So, when I spoke my frustration (and if you know me it was not in the nicest of tones) their other option was to walk through the entire downstairs until I reached the cafeteria and then I could take those elevators because they wont be locked. Finally, I get back on the first floor I am now sweating bullets and huffing and puffing for air so I had to sit down before I endured the walk back to my car. I finally made it home which felt like a million hours later and relaxed. Also, wanted to mention that even though I can’t really go out I can and do love having visitors :) just make sure you are healthy, haha.

  Since I am stuck in the house 24/7 I had time to be creative so I put together a video, nothing professional or anything but I think it came out okay! Here is the link to my Youtube page, feel free to go and watch the video, and subscribe if you’d like :) . http://www.youtube.com/user/glitsNglamxoxo

 

  I am sorry these blogs are only once a week right now, but until the evaluation nothing major to really write about everyday! If anything in my life should change –health wise I will definitely update you ASAP. But for right now everything is just holding its own and I am just waiting.  I wonder though, does anyone really read this? I hope so. 

  Please follow me and comment letting me know that this does get read :)  Hope you enjoy the video!

Talk to you Later~Breathe Easy
Ashley

Finally :)

Hello Everyone!

Finally Good News!!! I have dates for my evaluation for Cleveland Clinic. I have appointments on January 9^th, 10^th and the 11^th. They over nighted me a folder with everything I need to know. From my schedule of tests I am having done during my appts, brochures and packets all about transplants (as if I don’t already know), their particular protocol before, during and after the transplant and, a packet with a list of all hotels in the area. Of course I looked at the schedule and then went straight to the list of hotels. I was hoping we could stay at the Ritz Carlton or the Renaissance but the Intercontinental Suites seem like the best choice. The hotel is connected to the Cleveland Clinic and they offer patient discounts. When we are out there we will look around at apartments and stuff for after the transplant. I also spoke to Pittsburgh today and still waiting on a date for an evaluation with them. Trying to get an evaluation with them is beyond difficult but having one set with Cleveland is a huge weight off my shoulders!  

More exciting news!! My sister MacKenzie comes home on December 13^th! I miss her sooo much! She goes to school at Auburn University out in Alabama and I have not seen her since August. We skype a lot and talk on the phone a lot but I just can’t wait to see her <3

My sorority sisters are holding a benefit for me on December 10^th at Shooters Billards and Lounge in Pelham, NH. The event starts at 6:00pm and goes till 12:00am Tickets are $10 dollars before the event and $15 at the door. I was hoping to be able to attend but my Drs. have advised me as well as everyone else thinks it is best if I try to avoid large groups of people. There is just so much sickness going around right now and I cannot risk catching anything.

   Also there is a big benefit being held for me on February 11^th at the Andover Country Club. It is a dinner/dance with raffles, a silent auction as well as a live auction. Tickets are $75 dollars and they have to be bought before the event. I will continue to give more details about this benefit as I learn more details. If interested in attending either event please feel free to contact me through here, facebook or twitter.

   This past Sunday my grandparents held a benefit breakfast for me. All of their friends attended and they raised $1500 dollars! They thought it would be best if I did not attend because again, there is so much going around right now and they did not want me to catch anything.

   I have officially gotten into the Christmas spirit :). My mom and I have decorated the inside of our house (well mom decorated, I stood there and said “that looks beautiful”), total team effort if you ask me. I have finished most of my Christmas shopping which is very exciting! Not working around this time of year can be very difficult though. If anyone knows of a position that can be done from home, let me know! I will do anything for some extra cash :). This weather we are having lately is absolutely amazinggg :) I HATE snow and I HATE the cold, give me a little snow on Christmas Eve and Christmas Day and I am good for the entire winter :).

   Also some inside info—there is a webpage being created for me and as soon as it is up and running I will post the URL.

Talk to you all later~Breathe Easy,

Ashley